I've become quite a wizz at power packing. Like a whirling dervisher I can pack a hospital bag in the blink of an eye. On Tuesday morning we left for hospital again, Tuesday afternoon OG had a Cholangiogram MRI and last night we were back home. The consultant is aghast that OG will not stay in hospital, because, apart from what is going on with his liver, Guillaine-Barre is a very serious condition in itself and normally requires several months of intensive inpatient therapy But OG is made of stern stuff and very, very determined. And of course at home he is warm, hydrated, clean, optimistic and comfortable, surrounded by loved ones.
This latest test ruled out primary sclerosing cholangitis and cholangiocarcinoma both of which have a truly dreadful prognosis, plus there is no evidence of any other cancer so we were massively relieved at that. But with all the prayers being offered up why should we be surprised!
So the puzzle remains, what caused the liver function tests to return such bad results? Although the liver now appears to be spontaniously recovering it's too early to say that this will continue. And where do we go from here? The consultant now recommends that OG rest at home until after Christmas with weekly blood tests and regular visits from the GP and District Nurse. He will also pop in himself just to keep an eye on how things are going. He has given us his mobile 'phone number and said we can ring him anytime we are worried. In the meantime he encouraged us to arranged for the physio to come in and start weaving his magic to get those useless limbs working again.
I was recommended to read this Patience Strong poem by guineapigmum.
When you know not where to turn, stay still, just where you are.
There is something yet to learn.
Be careful lest you jar the threads that fate is weaving in a pattern you can't see.
Trust the Hand that works the looms of destiny.
Though it is your wish to set things right and put things straight,
Choose the wiser way.
With patience watch and wait.
There's a purpose in it all, as time will surely prove
And when you least expect it, you will see the mountain move.
I love it. I really need to let go and let God.
And while this has all been going on we are waiting the birth of our 5th greatgrandchild due tomorrow. The cycle of life continues.
Bob Hope - "A bank is a place that will lend you money if you can prove that you don't need it."
10 hours ago