One of our telesales ladies is auditioning for “Britian’s Got Talent” today. You can see her on youtube at http://www.youtube.com/watch?v=pVy6zWS-72A. Good luck Katie.
This week has been so frustrating, with OG practically bedridden and me getting more and more concerned. We seem to have fallen under the radar again. Yesterday morning I sent this fax to the oncologist (he is not set up for email at the hospital, can you believe that!) and copied in the GP to keep him “in the loop”.
“Dear Dr ---,
Would it be at all possible to have a telephone conversation with you sometime today? As you know my telephone number is ---------.
What I would like to discuss with you is the following:-
MY CURRENT SYMTOMS ARE
I’m virtually confined to bed.
My legs are weak and my knees give way
I need help to get the few steps to the toilet
I have lost muscle tone in my thighs
14 Tramacet a day was still not controlling pain
Yesterday my GP changed me to Tramadol every 3 hours + 2 Paracetamol 4 times a day.
The smallest effort leaves me totally exhausted
MY QUESTIONS ARE
You said that I would receive blood tests and further investigations as an outpatient. Is this still the plan?
Has an appointment been arranged for me to see the gastroenterologist?
If I have a liver biopsy will it be as an outpatient or in hospital as a private patient?
What is causing the immobility and pain? Because the onset of immobility and pain was so rapid and severe there was mentioned that perhaps it could be an autoimmune problem. Will this line of investigation be pursued? For example we know of two people who had identical symptoms caused by Guillain-Barre Syndrome.
I look forward to hearing from you sometime today.
I sent this in the morning, asking his secretary to give it to him, which she didn’t. However, he did ‘phone in the afternoon in response to our earlier query regarding “care in the community. That’s another joke!
He was extremely concerned that OG had deteriorated. The problem seems to be that the whole bloody system is screwed. He understands cancer, OG is his patient but he struggles with anything outside of his area of expertise and hasn’t been able to get any help whatsoever from the liver man. My guess is that the liver man is keeping OG at arms length because once he takes him on as a patient he has to meet the wretched government targets and he is probably already overloaded with patients.
However, my fax did eventually seem to get attention, although nothing happens until Monday because the whole system virtually closes down for the weekend! On Monday the District Nurse will come and take blood and the oncologist will request an urgent referral to a neurologist. In the meantime OG has been given a patch and a bottle of morphine to help him cope with the pain. I said that when he recovers from all of this he will have to go into rehab. But we will deal with that, “one day at a time”.
And finally ….the trouble with bucket seats is not everybody has the same size bucket..
GOOD FRIDAY MESSAGE - I posted this on 2 April 2010 and felt inspired to re-post this year. Regrettably, I should have done it yesterday but it is not too late! The message is...
2 hours ago